Pediatric and Adult Intercontinental Registry on Chronic ITP (PARC-ITP registry)

The PARC-ITP is a worldwide multi-center registry designed to collect data prospectively of children and adults with newly diagnosed idiopathic thrombocytopenic purpura (ITP). Since chronic ITP of children and adults shows similarities a common database is warranted to coordinate scientific activities in the field of ITP.

Clinical data, bleeding symptoms and management will be observed continuously by long-term follow-up over several years with the goal to recruit as many patients as possible.

The database will serve as the main part of the registry with the potential to add subsequent side-studies, which build the “trees in the park”.

Amendment 1 to the Pediatric and Adult Intercontinental Registry on Chronic ITP (PARC-ITP registry)

The PARC-ITP study protocol has been amended and approved by the Swiss Ethics Committee Basel, Switzerland, on May 11 2005.

Please see the ICIS Newsletter of June 2005 for a quick overview. All amendments are included in the study protocol (Version 2.0, 2005-2-25).

Amendment 2 to the Pediatric and Adult Intercontinental Registry on Chronic ITP (PARC-ITP registry)

The PARC-ITP study protocol has been amended and approved by the Swiss Ethics Committee Basel, Switzerland, on Oct 06, 2008. Please see the ICIS Newsletter of August 2008 for a quick overview. All amendments are included in the study protocol (Version 3.0, 2008-6-01)


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Overview

Download a flyer with an overview of the PARC-ITP study. ##