Intercontinental Cooperative ITP Study Group ICIS
The Intercontinental Cooperative ITP Study Group (ICIS) was founded in 1997 by physicians in the field of hematology to analyze the multiple diagnostic and therapeutic aspects of acute and chronic childhood Immune Thrombocytopenic Purpura (ITP). There are many questions, such as the natural history of childhood ITP, which need to be clarified as well as questions concerning diagnosis and therapy of ITP, such as the identification of early predictors of chronic ITP.
ICIS provides a long-term concept for prospective studies and new, evidence-based definitions of ITP by worldwide cooperation of physicians. Within 9 years, over 500 physicians from over 60 countries have participated or are participating in ICIS projects, and over 4’300 patients have been registered anonymously.
Registry results and future projects are discussed and analyzed at regular meetings (American Society of Hematology, American Society of Pediatric Hematology/Oncology, European Society for Pediatric Hematology and Immunology, Internationals Society on Thrombosis and Haemostasis, European Hematology Association and others) and State-of-the-Art ITP Expert meetings.
How can my patient be registered?
- Sign up for PARC-ITP Registry
Pediatric and Adult Registry on Chronic ITP,
with side studies on Genetics, Severe Bleeding, Quality of Life, Refractory and Secondary ITP (since 2004)
- Sign up for Splenectomy Registry (since 1998)
- Registry I 1997-2002 publications
- Registry II 2002-2007 publications
- Download a flyer with an overview of the PARC-ITP Registry